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What's your story? Tell us >
Every Disabled Child Matters
c/o Council for Disabled Children
National Children's Bureau
8 Wakley Street
London EC1V 7QE
tel +44 (0)20 7843 6318
fax +44 (0)20 7843 6313
[email protected]

End the NHS funding fog for disabled children!

Take action to get government to specify the health funding available for disabled children’s services in England - email your MP now!

EDCM and our partners ACT, Children’s Hospices UK and Whizz-Kidz have been campaigning to get more health funding spent on services for disabled children. A letter was sent to all PCTs and Local Authorities in December 2007 which set out the funding for disabled children’s services and confirmed that PCTs have additional baseline funding.

However, the findings of EDCM’s survey in June 2008 showed that not one PCT in England could quantify their spend on services for disabled children. This is despite disabled children being a priority in the NHS Operating Framework (see p23 of the download on the page)

This is partly because PCTs have not been told how much new funding is available - unlike local authorities, who all have ringfenced funding to spend on short breaks, and some of whom now have ringfenced childcare funding as well.

EDCM wants all our supporters to take action by emailing your MP and asking them to:

1) Write to Alan Johnson (Health Secretary) and Ed Balls (Children’s Secretary), asking them to announce the national health funding in the much-delayed Child Health Strategy due by the end of 2008.

2) Write to the local PCT Chair asking them to confirm that disabled children will be a local priority and whether they will specify local health funding.

*We will report further progress on this issue on this page.*

More from EDCM
News story: Disabled Children ‘may be let down by devolved NHS’
News story: Ed Balls: Health can match our commitment
News story: Ministers say every area must have disabled children strategy

Early Day Motion
155 MP's signed Early Day Motion 1427 - Health funding for disabled children, tabled in the 2007/08 Parliamentary session

Downloads

Download the Ministerial letter to PCTs and Local Authorities
Download the NHS Operating Framework 2008/9 (England)

Contact a family
Council for Disabled Children
Mencap Mencap
Special Educational Consortium
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